*In honor of all of my other chronically ill friends who have had someone tell them to stop talking about being sick because THEY are tired of hearing it*
You maybe tired of hearing me talking about being sick, but how do you think I feel having live with it day to day? I don’t care if you are tired of hearing that I am sick, because guess what? I am sick and I am in pain! Whether I talk about it to you or not that will never change.
My days are hard, I have to think about how to complete the simplest tasks that YOU as a healthy person can do with out thinking about it. I have to create a plan for my days to make sure that I have enough energy to get through my day. I have lost who I once was. And I count on my family and my friends to help me connect to that person again. So, yes, I have to talk about my illness. I have to talk about my pain. I can never forget that I have this illness because it has changed my life completely. And comments from the people who are supposed to be my support, that say they are getting tired of hearing about my illness and my life with it, feel like a grand betrayal.
It feels as if I have no one to turn to. It feels as if I have to get through this alone, as if no one cares. Me talking about my illness does not mean that I have given in to the illness. I does not mean that I have stopped fighting. Me talking about my illness is my way of making sure that healthy people, like you, can have an understanding of what my illness does to me. The more people that are aware of just how hard it is to live with being sick the better chance I have of seeing SOMEONE make a difference to keep future people who are diagnosed with this from having to go through what I have.
So whether you are tired of hearing or seeing me talk about being sick I WILL NOT STOP TALKING ABOUT IT. I will continue to blog, tweet, and set Facebook status about what I am going through. I will continue to let people know that I am living with Lupus and APS and Fibromyalgia and Migraines and I will continue to show people with my words what I am going through. And if you are truly done with seeing these things, maybe it’s time for you to walk away, because in order for me to continue my fight I only want positive, supportive people around me.
Shame on anyone who would say that to you or anyone else in a similar situation! For what it’s worth, I’m amazed that you manage to run a house and take care of 3 kids and a dog with all you have going on physically. I can’t imagine how hard that must be for you. To pretend that the pain doesn’t exist so that other people don’t have to think about it is to deny who you are. Maybe instead of complaining about your posts, they should thank God that they don’t have to live like that and ask Him to bless you give you strength. Keep talking Lara, if they don’t like it, that’s tough!